A Celebration
For all who are living through a dark night of the soul
or who think there is no hope
or that there is hope but it seems a long time in coming
who are tired
who are depressed
This is for you
All those hours of research
the special menus
the reading of blogs such as this one
the cajoling
the patience
the learning of new skills (and that’s just you)
the finding yourself in a club to which you didn’t apply
it’s worth it
We all know that fully embracing what it means to be a special needs parent can help us grow. We discover new ways of seeing the world. We learn to be more tolerant of difference. We stretch and learn and do things we never knew we were capable of. And sometimes that’s enough. We accept our children as they are and we love them and that is enough.
And then they grow!
not upwards or outwards but internally, learning those skills which are so hard won
the conversations of more than one loop
the catching of a ball
a dry night
a test passed
“I love you”
And then they grow some more…
This morning, my girl, my big 18 year old girl, invited me and her step-dad to a magic show. She has been to see three circuses this summer, so she was full of inspiration. She won a colourful baton at the fair so she had her prop. She has been asking all sorts of “is this real or pretend” questions, these past few weeks, so I knew her mind is whirring…
But this surprised me
Her magic show comprised her singing and dancing and twirling…moving her baton in a cross-patterning way through and around and across in a way I have spent hours practising with her but never seen her spontaneously do. She threw herself on the floor and used my elliptical trainer to get herself high. She used her whole body all around her. She matched her movements to the song, from Pocahontas to the Blue Danube. She curtsied and bowed to the whole audience all around her, real and pretend. She brought it all together in a neuro-surge of growth and she loved it.
And so did we.
So I am celebrating
all those times I wondered if it was worth it but carried on anyway
all that money I still have on my credit card
all the education that seemed wacky and worked
or seemed sensible and didn’t
all that playing
all that pretend
and all those jigsaws
even the jigsaw we are doing today
it was worth it
it is worth it
and everything you are doing is worth it too
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Does your life sometimes seem like a series of repetitive tasks?
We talk about loving our Child.
Once upon a time there was a Prince who decided he wanted to find the most beautiful jewel in the world. He was going to give it to his bride as a wedding gift.

Did you ever lie on the ground as a child and gaze up into the summer sky and lose yourself in the clouds?
I am spending a few weeks in Turkey. We are lucky enough to have a house in a small village. The thirty or so houses are spread out, set amonst fields and trees and pasture, as this is a peasant village, and people live from the land.
